Quote:
Originally Posted by adidasss
Holy wow.
But I've been meaning to ask, if I may, what is her level of disability? Can she move around or is totally bedridden? And mentally I assume she is alright?
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She has MS (Multiple Sclerosis) which has worsened since about 2010. She is now completely bed bound, unable to feed herself, move her hands or legs or do just about anything for herself. She has two carers who come in three times a day, seven days a week, mostly in the morning to change her and dress her and wash her etc, and again in the evening to put her on the commode (toilet) and that's about it. I do all the rest.
I have to cook her food then feed it to her, give her specially thickened water on a spoon, as normal water runs too fast and chokes her. I have to change her at night so that she's not lying in wet clothes, give her all her medication, hold her cigarette as she smokes it, move her up the bed (as she slides down every time the orthopaedic mattress moves as she is raised up to sit, down to lie down etc).
Mentally she's fine; we get on well but her speech is so badly slurred now that it's becoming impossible to interpret what she says. I'm worried what happens when I can no longer understand her at all. I shouldn't say she's fine; she isn't of course, but she has all her faculties and can watch TV, listen to music and enjoys me reading to her every morning; she can follow everything but if she has to read anything off a screen, no chance. Her eyesight has gone very bad over the last few years. She also tends to choke on her food a lot, which can be downright terrifying.